Lecture

Ethical Considerations in Research Participation

Graph Chat

Chat with Graph Search

Ask any question about EPFL courses, lectures, exercises, research, news, etc. or try the example questions below.

DISCLAIMER: The Graph Chatbot is not programmed to provide explicit or categorical answers to your questions. Rather, it transforms your questions into API requests that are distributed across the various IT services officially administered by EPFL. Its purpose is solely to collect and recommend relevant references to content that you can explore to help you answer your questions.

In course

BIO-455: Introduction to law and ethics

The aim of this course is to introduce students to the basic legal and ethical concepts relevant to research in the life sciences and its translational application, and to provide them with the essential tools to identify legal and ethical issues in their ...

Description

This lecture discusses ethical considerations in research participation, focusing on the compensation for biological material and the importance of informed consent. It explores the differences in regulations between countries, such as the commercialization of biological samples. The lecture also delves into the balance between utilitarian and deontological ethics in research, using the example of the Ebola epidemic to illustrate decision-making processes. Additionally, it addresses the challenges posed by genetic testing available online and the need for proper regulation to protect participants' rights and ensure scientific integrity.

Official source

Ontological neighbourhood

Philosophy

Ethics: Topics in ethics

Related concepts (26)

Applied ethics

Applied ethics refers to the practical aspect of moral considerations. It is ethics with respect to real-world actions and their moral considerations in the areas of private and public life, the professions, health, technology, law, and leadership. For example, the bioethics community is concerned with identifying the correct approach to moral issues in the life sciences, such as euthanasia, the allocation of scarce health resources, or the use of human embryos in research.

Genetic testing

Genetic testing, also known as DNA testing, is used to identify changes in DNA sequence or chromosome structure. Genetic testing can also include measuring the results of genetic changes, such as RNA analysis as an output of gene expression, or through biochemical analysis to measure specific protein output. In a medical setting, genetic testing can be used to diagnose or rule out suspected genetic disorders, predict risks for specific conditions, or gain information that can be used to customize medical treatments based on an individual's genetic makeup.

Ethics

Ethics or moral philosophy is a branch of philosophy that "involves systematizing, defending, and recommending concepts of right and wrong behavior". The field of ethics, along with aesthetics, concerns matters of value; these fields comprise the branch of philosophy called axiology. Ethics seeks to resolve questions of human morality by defining concepts such as good and evil, right and wrong, virtue and vice, justice and crime. As a field of intellectual inquiry, moral philosophy is related to the fields of moral psychology, descriptive ethics, and value theory.

Utilitarianism

In ethical philosophy, utilitarianism is a family of normative ethical theories that prescribe actions that maximize happiness and well-being for all affected individuals. Although different varieties of utilitarianism admit different characterizations, the basic idea behind all of them is, in some sense, to maximize utility, which is often defined in terms of well-being or related concepts. For instance, Jeremy Bentham, the founder of utilitarianism, described utility as: That property in any object, whereby it tends to produce benefit, advantage, pleasure, good, or happiness .

Pragmatic ethics

Pragmatic ethics is a theory of normative philosophical ethics and meta-ethics. Ethical pragmatists such as John Dewey believe that some societies have progressed morally in much the way they have attained progress in science. Scientists can pursue inquiry into the truth of a hypothesis and accept the hypothesis, in the sense that they act as though the hypothesis were true; nonetheless, they think that future generations can advance science, and thus future generations can refine or replace (at least some of) their accepted hypotheses.

Related lectures (64)

Genomic Medicine: Ethics and Applications

Explores genomic medicine, covering genetic determinism, personalized medicine, genetic anomalies, and ethical considerations.

Ethics of Engineering: Kantian Approach

Explores Kantian ethics, virtues, and the common good in engineering decision-making, emphasizing the ethical implications of individual actions on collective well-being.

Post-Genomics and Health Challenges

By Dr. Luca Chiapperino delves into the implications of post-genomics on health and society, focusing on the molecularization of our biography, experiences, and living environment.

Ethics and Law of AI

Delves into ethics and law in AI, focusing on values, normative ambitions, and ethical challenges.

Ethical Analysis Cycle: Major Normative Theories and Engineering Design