Lecture

Personalized Health Data Protection

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In course

HUM-388: Personalized health: biomedical & social challenge

La médecine personnalisée, préventive, prédictive et participative bouleverse les connaissances médicales établies, ainsi que les configurations sociales et politiques de la médecine. Ce cours analyse ces processus à travers une approche interdisciplinaire ...

Description

This lecture covers the legal framework for sharing research data in Switzerland, focusing on the protection of personal health information. It explains the concepts of data categorization, consent types, and exceptions for data reuse. The instructor discusses the challenges of data anonymization and the importance of data security measures in research collaborations.

Instructor

Luca Chiapperino

Expertise Social Studies of Science; Science and Technology Studies; Public Health Ethics; Applied Philosophy; Sustainability Transitions Teaching & PhD Courses Health A: Innovation, Equity, Sustainability HUM-125(a) The course provides an interdisciplinary examination of key global health challenges, focusing on biomedical innovations, pharmaceuticals, sustainability, mental health, and health policies. It offer a critical skillset to engineering students approaching these complex health ch

Official source

Related concepts (32)

Data Protection Directive

The Data Protection Directive, officially Directive 95/46/EC, enacted in October 1995, was a European Union directive which regulated the processing of personal data within the European Union (EU) and the free movement of such data. The Data Protection Directive was an important component of EU privacy and human rights law. The principles set out in the Data Protection Directive were aimed at the protection of fundamental rights and freedoms in the processing of personal data.

Data security

Data security means protecting digital data, such as those in a database, from destructive forces and from the unwanted actions of unauthorized users, such as a cyberattack or a data breach. Disk encryption Disk encryption refers to encryption technology that encrypts data on a hard disk drive. Disk encryption typically takes form in either software (see disk encryption software) or hardware (see disk encryption hardware). Disk encryption is often referred to as on-the-fly encryption (OTFE) or transparent encryption.

Information privacy

Information privacy is the relationship between the collection and dissemination of data, technology, the public expectation of privacy, contextual information norms, and the legal and political issues surrounding them. It is also known as data privacy or data protection. Data privacy is challenging since attempts to use data while protecting an individual's privacy preferences and personally identifiable information. The fields of computer security, data security, and information security all design and use software, hardware, and human resources to address this issue.

National data protection authority

There are several national data protection authorities across the world, tasked with protecting information privacy. In the European Union and the EFTA member countries, their status was formalized by the Data Protection Directive and they were involved in the Madrid Resolution. This project is a part of the work of the International Law Commission of the United Nations. On the European level, it is the G29 and the European Data Protection Supervisor (EDPS).

General Data Protection Regulation

The General Data Protection Regulation (Regulation (EU) 2016/679, abbreviated GDPR) is a European Union regulation on Information privacy in the European Union (EU) and the European Economic Area (EEA). The GDPR is an important component of EU privacy law and human rights law, in particular Article 8(1) of the Charter of Fundamental Rights of the European Union. It also governs the transfer of personal data outside the EU and EEA.

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