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Paola Daniore

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Publications associées (4)

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Public views on research with publicly available data in Switzerland: Implications for digital research, science communication, and policy

Paola Daniore

The increasing volume of publicly available data brought about by digitalization offers researchers opportunities to examine public sentiment on various national and global issues. However, concerns linked to the use of publicly available data in digital r ...

SAGE Publications2025

The sociopolitical discourse on health data sharing in Switzerland: lessons learned from 1992 to 2023 for present public trust building – a multi-method study

Paola Daniore

BACKGROUND: Public trust is central for the successful implementation of health data sharing initiatives, and it is partly shaped by the public’s past experiences with the system. Understanding how these experiences have framed current public trust is esse ...

2025

Real-world patterns in remote longitudinal study participation: A study of the Swiss Multiple Sclerosis Registry

Paola Daniore

Remote longitudinal studies are on the rise and promise to increase reach and reduce participation barriers in chronic disease research. However, maintaining long-term retention in these studies remains challenging. Early identification of participants wit ...

PUBLIC LIBRARY SCIENCE2024

Fostering public trust in national health data platforms: key considerations for public involvement activities for England and Switzerland

Paola Daniore

Recent developments in national health data platforms have the potential to significantly advance medical research, improve public health outcomes, and foster public trust in data governance. Across Europe, initiatives such as the NHS Research Secure Data ...

CAMBRIDGE UNIV PRESS2025